Guidance
PRincipleS for handling end-of-participation EVEnts in clinical trials REsearch (PeRSEVERE) – October 2023
Endorsement of UK Standards for Public Involvement in Research – December 2019
The UKCRC Registered CTU Network is pleased to endorse the UK Standards for Public Involvement in Research. The Network believes that this guidance is an important step towards improving the practice of public involvement in clinical trials throughout the UK and supports the adoption of its principles across its Registered CTUs. We are also pleased to note that a number of Registered CTUs were involved in the consultation and testing phases of the project and we are grateful for their efforts.
Reports & Publications
Patient and Public Involvement and Engagement Task and Finish Group Report – May 2018
Resources for patients and the public
What is a clinical trial? Find out more here: www.nhs.uk/conditions/clinical-trials/
How can I get involved? The Be Part of Research website can help you find out about health and social care research taking place in England, Northern Ireland, Scotland and Wales: https://bepartofresearch.nihr.ac.uk/
Collaborate
The CTU Network PPI&E Task & Finish Group is currently undertaking a number of projects around the training of trial management staff.
If you work within a registered CTU and would like to find out more about how to get involved please contact regctus@leeds.ac.uk.
Membership
For a list of current PPI&E Task & Finish Group members please click here.
