Guidance
PRincipleS for handling end-of-participation EVEnts in clinical trials REsearch (PeRSEVERE) – October 2023
Endorsement of UK Standards for Public Involvement in Research – December 2019
The UKCRC Registered CTU Network is pleased to endorse the UK Standards for Public Involvement in Research. The Network believes that this guidance is an important step towards improving the practice of public involvement in clinical trials throughout the UK and supports the adoption of its principles across its Registered CTUs. We are also pleased to note that a number of Registered CTUs were involved in the consultation and testing phases of the project and we are grateful for their efforts.
Reports & Publications
Patient and Public Involvement and Engagement Task and Finish Group Report – May 2018
Resources for patients and the public
What is a clinical trial? Find out more here: www.nhs.uk/conditions/clinical-trials/
How can I get involved? The Be Part of Research website can help you find out about health and social care research taking place in England, Northern Ireland, Scotland and Wales: https://bepartofresearch.nihr.ac.uk/
Resources for CTUs
Generic trial animations [March 2025] – The Oxford Clinical Trials Research Unit (OCTRU), Nottingham CTU, and Centre for Trials Research have produced a number of Animated Explainer Videos (AEVs) which can be used to help individuals understand more about taking part in a trial. AEVs on Informed Consent, Randomisation, and Safety in Clinical Trials are available in 6 languages. Funded by the NIHR Efficient Clinical Trials Call, these AEVs are free to use for all registered CTUs.
To view the English versions of the animations, or to request copies for any of your trials or CTU websites, please and to visit https://explain.octru.ox.ac.uk/animations.html and to request copies for any of your trials or CTU websites please complete the request form on that page.
Collaborate
The CTU Network PPI&E Task & Finish Group is currently undertaking a number of projects around the training of trial management staff.
If you work within a registered CTU and would like to find out more about how to get involved please contact regctus@leeds.ac.uk.
Membership
For a list of current PPI&E Task & Finish Group members please click here.
